Faith, Hope, Love, & Radicava
In my mind today, I’m thinking of rejoicing. This is the third week of advent. We are called to rejoice remembering our savior entered the world. Behold! Emmanuel is here within each of us. He is.
Ironically, I’m also rejoicing because with faith, hope, and love God has granted an approval for me to begin infusions of a new drug to sustain me on this side of heaven for a bit longer. It’s called Radicava. If all goes well, Sal the Hopeful Gal will be given more time to share my light with you.
If you research ALS, there are so, so many variations. I’ve already been blessed by a slower progressing form of the disease. Now, Radicava may slow down my progression further still. So Sal is the Rejoicing Gal! My first infusion starts tomorrow. I promise to update as I go through this process. We PALS (people with ALS) pray for more time. We want to love just a little longer.
Are there glitches? Oh yes, isn’t there always? First, I’m praying I have no allergic reactions. Second, I’m praying both my insurances help pay for it. At the moment, only my private insurance is willing to pay. The costs are outrageous My first infusion is $15,000. Only 70% is being covered at the moment, but I have hope that all will work out. I’ve been carried for my 48 years in His Palm, and I have peace with whatever life throws my way. Just this morning I was reminded that each trouble we encounter has meaning and purpose. Last, I’m asking for your continued love and prayers as I begin this part of my journey.
So students, God willing we will have many more lessons together. I’m headed to the church today to work with the youth on a Christmas skit to be presented Thursday night. I asked God to use me and I sincerely thank Him for doing so through help from my family and friends. I am living not dying with ALS. I’m not giving up or slowing down. Just like Robert Frost penned, “I have promises to keep and miles to go before I sleep.”
Sarah Anderson Alley
Sal the Radicava Gal
Dedicated to past and present PALS. We pray that there will be no more PALS in the future.
Quotes of the Day:
“Wherever the art of medicine is loved, there is also a love of humanity.”
Hippocrates
“I love people who make me laugh. I honestly think it’s the thing I like most, to laugh. It cures a multitude of ills. It’s probably the most important thing in a person.”
Audrey Hepburn
“Love cures people – both the ones who give it and the ones who receive it.”
Karl A. Menninger
https://www.radicava.com/patient/
https://www.cbsnews.com/news/new-als-drug-approved-for-lou-gehrigs-disease-radicava/
showtunessal 