showtunessal

Category: ALS

  • 8 Years Ago

    —

    by

    showtunessal
    in ,

    I woke up today in one of the best moods I have had in awhile. I was downright giddy. I had friends coming and a sunny day to roll outside INDEPENDENTLY with handsome sidekick Hugo, my dog. I had a friend who is creating a garden of Eden for me. My hip, beautiful, and ultra…

  • 57th Trip!

    —

    by

    showtunessal
    in , ,

    In my mind lately I have had long periods of time not feeling well in my body and spirit. ALS has plateaus and valleys. There are no longer any peaks. You know, students, growing stronger physically. If you are blessed with time, you can adapt with technology, Thanks be to God. I recently went on…

  • Woman of God

    —

    by

    showtunessal
    in

    This Lent I discovered this prayer from Mother Olga of the religious order founder and servant mother of the Daughters of Mary of Nazareth. This prayer will stay on my lips until my last breath, “Empty me. Fill me. Use me.” It cleanses my heart. It fills me with the Holy Spirit. Most importantly it…

  • Negative or Nice

    —

    by

    showtunessal
    in , , , , ,

    Here I am up in the 3rd watch. Reading and praying asking God to help me write another letter for Him to the times in which we live and are in charge of turning back the dark and to help save souls: protect orphans and widows, help immigrants, love others as you (should) love yourself…

  • Decrease then Increase

    —

    by

    showtunessal
    in , , ,

    January 10, 2026 Daily Reflection  John 3:27-30 27 John answered, “A man can get only what God gives him. 28 You yourselves heard me say, ‘I am not the Christ, but I am the one sent to prepare the way for him.’ 29 The bride belongs only to the bridegroom. But the friend who helps…

  • Saturday Story “Cards”

    —

    by

    showtunessal
    in , , , ,

    Well I am two weeks behind this Saturday challenge. I am going to ” kill two birds with one stone ” and use it as a blog post. I have been holding it in my mind and heart; I hope you enjoy it. In my mind, I have been thinking about cards. When we did…

  • Story in 38 Words #1

    —

    by

    showtunessal
    in ,

    Since his death, I stare at the computer checking my email for someone to razzle-dazzle me out of my algorithm of grief. Opening my email: Grand Opening of Illicit Waxwork Museum. Meet me. Eliciting my response, “What time?” I am doing these for fun! Fiction! Stay tuned every Thursday. Sal I had to use these…

  • What a Life!

    —

    by

    showtunessal
    in , , ,

    In my mind today I am so happy. I want to share yesterday with you. Let’s look at a day in the ALS life. On Saturdays I stay in bed until early afternoon. I give my troops, my caregivers (Abbey and Andy) time to get up slowly. As soon as one of them wakes up,…

  • In my bones

    —

    by

    showtunessal
    in , ,

    In my mind lately I’ve made a big mistake. I have taken my eyes and mind inward. I have allowed the pity party of this earthly life to take my focus from what really matters in one’s life. Students in the back row, it’s not “The all about Me Show.” Trying desperately to fulfill your…

  • Helpless

    —

    by

    showtunessal
    in ,

    In my mind today, I have so many sad thoughts and feelings. I don’t want to leave my bed. I am trying desperately to outrun ALS, but I am in another valley. There seems to be no more outs to pull me through this. I know it’s different this time because I NEVER want to…