showtunessal

Category: ALS

  • IHOP Stop

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    Well, we survived last weekend’s adventure…but I still have to tell you about the IHOP stop! Abbey and I were dreaming BIG about having a meal in peace and uninterrupted. Remember how we were parched after the water was sadly dumped in the fancy fountain at The Orpheum? That life-giving (and keeping Sal’s UTIs away)…

  • Daughter and Mother Day Out!

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    Most of you who know me  know I am living with ALS and have been blessed with a slow progression. It has been 14 years of deterioration of my body. I have transformed from a 6 foot tall athletic woman to a 4 foot Humpty Dumpty in a wheelchair. I imagine myself as an ogre…

  • SOB!

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    Gotcha! I have not been changing teams to the dark side! Recently I had a great time with SOB. It made this old girl in the scoot get some self esteem back. My daughter was with me along with Lauren and Zuri. I know front row students are aghast. Ms. Alley is taking a walk…

  • 8 Years Ago

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    I woke up today in one of the best moods I have had in awhile. I was downright giddy. I had friends coming and a sunny day to roll outside INDEPENDENTLY with handsome sidekick Hugo, my dog. I had a friend who is creating a garden of Eden for me. My hip, beautiful, and ultra…

  • 57th Trip!

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    In my mind lately I have had long periods of time not feeling well in my body and spirit. ALS has plateaus and valleys. There are no longer any peaks. You know, students, growing stronger physically. If you are blessed with time, you can adapt with technology, Thanks be to God. I recently went on…

  • Woman of God

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    This Lent I discovered this prayer from Mother Olga of the religious order founder and servant mother of the Daughters of Mary of Nazareth. This prayer will stay on my lips until my last breath, “Empty me. Fill me. Use me.” It cleanses my heart. It fills me with the Holy Spirit. Most importantly it…

  • Negative or Nice

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    Here I am up in the 3rd watch. Reading and praying asking God to help me write another letter for Him to the times in which we live and are in charge of turning back the dark and to help save souls: protect orphans and widows, help immigrants, love others as you (should) love yourself…

  • Decrease then Increase

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    January 10, 2026 Daily Reflection  John 3:27-30 27 John answered, “A man can get only what God gives him. 28 You yourselves heard me say, ‘I am not the Christ, but I am the one sent to prepare the way for him.’ 29 The bride belongs only to the bridegroom. But the friend who helps…

  • Saturday Story “Cards”

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    Well I am two weeks behind this Saturday challenge. I am going to ” kill two birds with one stone ” and use it as a blog post. I have been holding it in my mind and heart; I hope you enjoy it. In my mind, I have been thinking about cards. When we did…

  • Story in 38 Words #1

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    Since his death, I stare at the computer checking my email for someone to razzle-dazzle me out of my algorithm of grief. Opening my email: Grand Opening of Illicit Waxwork Museum. Meet me. Eliciting my response, “What time?” I am doing these for fun! Fiction! Stay tuned every Thursday. Sal I had to use these…