I think I am figuring out why I have been losing medulla as in oblongata. I’m desperately seeking a Papa Smurf, Ratz (I was his Paparazzi and he was Ratz), Poppy, or MSH (My Sweet Husband.) Also, I am in another ALS decline. I don’t wanna look the Beast in the eyes. I have to admit I miss feeling like a regular woman who could be considered “pretty.” I am so far from the healthy Sal. The further I got from the old healthy Sal, Ken would look me in the eyes and say, “I just see the girl I married.” He would hold me while I cried. I am on the patio listening to Alexa play random songs. I know he is the air waves, and somewhere I will hopefully be one day. The Stones, CSNY, Tom Petty, Fleetwood Mac, The Boss, and even R. Stevie Moore songs we shared. He is there and I am here. I am still learning to walk with the grief of losing my health and the love of a lifetime. I will surrender all of this to the one who carried the biggest cross. If you cried read on so you can laugh at my goofy tail!
Comic Relief!
ALS is HEAVY. ALS is DARK. ALS is TERMINAL. I am going through some things. I think it is emotional. I am not only losing my muscles and evolving into a complete stranger. I have literally no hair, three chins, and a neck of a linebacker. After watching an episode of The Pitt when they were trying to save someone with a horrific spine injury. Dr. R exclaimed, “Come up with a decision or we are going to have another floating head!” Floating head…. It hit me. I know you’re thinking where is the comic relief? This s%@+ is so sad and tragic. Here it comes. Sal begins her lunar mission to get her groove back. New clothes, lipstick, and flirting unabashedly with the another gpa trying to get called beautiful one more time by a member of the opposite sex hoping that I can still turn someone’s head by my physical attraction not my wheelchair, my sniff, my catheter, or my rotund figure that mimics Mrs. Claus. Ho, Ho, Ho H€π! Does anyone see me? Well I did something terrible! I hit the Google search and typed dating website site for disabled people like Quadriplegics. I bit my lip and hit Enter. Holy shirtballs! I struck oil. I read about the choices. To protect the innocent and not so innocent, I will not disclose the actual names. My goofy tail created a profile and to be safe used a picture of St. Mary for my avatar. Surely they would pick up what I was putting down. The p-train has left the station. I put looking for friendship and good conversation. I am a female. Old as dirt and Quadriplegic with continuing muscle wasting. It is a slower moving ALS and I have been living with it for 14 years. Trying to leave a glimmer of hope. Not a cure. Okay, I clicked activate account. Immediately the inbox was popping off like the Fourth of July Fireworks. MrNiceGuy 4 messages. What the fig? I was perusing the members and saw Ringo1964. He posted a YouTube video, Don’t stop me now by Queen. I thought okay. I clicked friend request. Another ding from MrNiceGuy. Really? Then I saw billybones. Definitely NO. Next, HubbaBubba70. Looked like a regular Joe. Hmm. Okay. I clicked the friend request. You guessed it, MrNiceGuy:
MrNiceGuy 9:25 AM
Hi and it’s nice to meet you
MrNiceGuy 9:40 AM
Cool. My name is Gary.
Sal 9:38 AM
Every day is a good day. God is Good all the Time!
MrNiceGuy 10:13 AM
What is your name?
Monday
Sal 2:02 PM
I am Sal, Sarah. Nice to meet you.
MrNiceGuy 2:02 PM
How are you doing today?
Sal: Great Gary. Chilling with my dog Hugo.
MrNiceGuy 2:09 PM
Sweet. What you been up to?
Sal 2:13 PM
I am bedbound today. Listening to music and talking to friends on the phone. You?
MrNiceGuy 2:20 PM
I have been chilling out watching tv
MrNiceGuy 2:25 PM
Chatting with friends on the phone
MrNiceGuy 6:23 PM
Good evening
Sal 7:10 PM
I am here to find friends and good conversation. I am a former teacher of 20 years. My body is broken, but my mind is in overdrive. I have a lot of hobbies: reading fiction and non-fiction, writing, gardening with the help of my sitter and friends, watching TV series with my daughter (currently The Last Bennett Sister, From, and Widow’s Bay) sports , and music. I am trying painting watercolors with my mouth. Thanks for your time and ear. Sal
MrNiceGuy 7:47 PM
No problem. If you decide to call or text let me know no rush
Monday
MrNiceGuy 8:15 PM
Are you married or single.
Sal 8:32 PM
Too old for you. I am a widow. My husband died in 2022. We were married 32 years. I am 57 and we can be friends.
MrNiceGuy 8:33 PM
Sure. I’m 30. Im a man now. Would you like to call or text if you want too
MrNiceGuy 8:37 PM
I’m sorry about your husband
Sal 8:39 PM
I am good with the website messaging. I have 2 kids that are 35 and 33.
MrNiceGuy 8:40 PM
It’s fine we can message here instead
MrNiceGuy 8:44 PM
Cool. I feel so lonely now
Sal 8:48 PM
We all do from time to time? Do you have any hobbies
MrNiceGuy 9:03 PM
Yes basketball and soccer
MrNiceGuy 8:23 PM
Good evening sal
Sal Good evening.
I deleted the account and app!
showtunessal 
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