showtunessal

Tag: ALS

  • Look Up

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    In my mind, I have been carrying confusion, grief, and anger. I just haven’t felt like I was on the right path. I have been on the “struggle bus” some may say. Struggling with my family, struggling with my heart, struggling with the world’s deterioration of good and defining good, struggling with death, and struggling…

  • Women and Men of Good Will

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    In my mind, I have been so busy with a head full of dreams. Dreams of rescuing children suffering in an America full of resources, but failing to clothe, feed, shelter the most vulnerable and valuable in our society, the widows (elderly) and orphans (from neglect from addiction not just substances but also the ego…

  • Grace Overload

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    In my mind today, I am still exhausted from last Saturday. It was the annual Autumn March for ALS. This was the 9th year for the race and my 13th year of living with ALS. I am so, so blessed to have been given longer than the average 3-5 years. I have tried my very…

  • Saturday Story “Cards”

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    Well I am two weeks behind this Saturday challenge. I am going to ” kill two birds with one stone ” and use it as a blog post. I have been holding it in my mind and heart; I hope you enjoy it. In my mind, I have been thinking about cards. When we did…

  • Thursday Story Challenge 50 Words #4

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    Jo remembered murderously critiquing to find the right words. She rolled the dice while munching a cupcake and considered not giving him the poem. They were only 13. Umbrella  Under the Umbrella with YOU Skies are always Blue. My first kiss under the Dome You promised you’d always be True.

  • Magic Umbrella #3

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    “Tom?” Petrified! My heart felt like I just completed a heptathlon. He looked the same except for the pepper gray hair and beard. “Remember that note you gave me written in crayon?” he asked. “The poem about the magic umbrella?” “Yes.”

  • What a Life!

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    In my mind today I am so happy. I want to share yesterday with you. Let’s look at a day in the ALS life. On Saturdays I stay in bed until early afternoon. I give my troops, my caregivers (Abbey and Andy) time to get up slowly. As soon as one of them wakes up,…

  • In my bones

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    In my mind lately I’ve made a big mistake. I have taken my eyes and mind inward. I have allowed the pity party of this earthly life to take my focus from what really matters in one’s life. Students in the back row, it’s not “The all about Me Show.” Trying desperately to fulfill your…

  • Helpless

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    In my mind today, I have so many sad thoughts and feelings. I don’t want to leave my bed. I am trying desperately to outrun ALS, but I am in another valley. There seems to be no more outs to pull me through this. I know it’s different this time because I NEVER want to…

  • Anti-Christ Culture

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    In my mind today, I am thinking about how blessed I am. To be able to have a purpose for God and the ability to share the messages of Him is my purpose until I get to the Spiritual season. Because of amazing children and Hospice care, the future’s so bright, I gotta wear shades!…